For organisations
Before you redesign a service, understand what it feels like to live inside it.
"Traditional performance data tells you what the service did.
Lived experience can help show what happened around it."
The systems and services people have told us about
2 experiences have been documented so far. A person can name more than one system.
The human cost people have described
Avg. delay
255.5 wks
Days spent chasing
0
Work days lost
0
Most affected life areas (high or severe)
The questions people wish had been asked sooner
What is this doing to the rest of the family? — 1
Only responses where the person explicitly consented to aggregation are counted.
Early patterns across systems and places
Reported impact by system
Not enough per system yet.
Where experiences come from (min. 3 per area)
Not enough in any single area yet.
Questions worth asking earlier, and differently
Drawn from what people told us was never asked of them — reframed as prompts for services to consider earlier.
Who this is for
People working to understand, design or improve services — and the people who use them.
Read the evidence, or talk to us about what it might mean for your service.
No hard sell. We are interested in whether this is useful to you, and how it could be more so.